WP1: Project management and coordination
Project Management and Coordination, led by NeHA and spanning from Month 1 to Month 48, is designed to enable the cross-border use of health data in alignment with the purposes outlined in the EHDS regulation. A well-structured national management framework is vital to oversee both national and cross-border activities, ensuring the successful implementation of the project while addressing national specificities.
This framework will also play a pivotal role in the European HealthData@EU temporary governance body, contributing to decision-making, strategy development, and the implementation of policies and timelines. It will ensure alignment with agreed objectives and facilitate compliance across stakeholders.
Moreover, the management structure will actively monitor project progress, ensuring timely reporting and adherence to the project schedule. It will coordinate efforts across various work packages and partners to ensure the smooth operation of the HealthData@EU infrastructure. Key activities include organizing regular meetings, assessing progress, defining strategies and timelines, and setting targets to achieve project objectives effectively.
WP2: Dissemination, training and support
Dissemination, training and support, led by NeHA, extending from Month 1 to Month 48, aims to ensure effective utilization of the health data access body and promote understanding of its functions and responsibilities, comprehensive awareness-raising and training initiatives are paramount. This involves targeted dissemination campaigns aimed at citizens, data holders, and users to promote HealthData@EU and educate stakeholders about the access body's role. Additionally, specific communication efforts will be directed towards data holders, users, and scientific communities. Furthermore, tailored training activities will be conducted for access body staff, data holders, and users, facilitating data access processes and fostering a deep understanding of the system. Educational materials, including guidelines and manuals, will be generated and made publicly available. Finally, a help desk service will be established to provide support in accordance with EHDS proposals or decisions made within the HealthData@EU governance body.
WP3: Evaluation
The evaluation led by NeHA, extending from Month 1 to Month 48, aims toTo ensure the successful implementation of digital business capabilities outlined in this application, comprehensive performance monitoring and evaluation activities will be conducted. This involves the establishment and monitoring of performance indicators to track progress and measure success. Additionally, an evaluation process will be undertaken to assess the effectiveness of the implemented digital business capabilities, determining their impact and identifying areas for improvement. Through these activities, the project will gauge the extent to which the digital business capabilities meet the intended objectives and contribute to overall project success.
WP4: Sustainability
Sustainability led by NeHA, extending from Month 1 to Month 48 aims to guarantee the longevity and resilience of the digital business capabilities established within this project, a comprehensive sustainability plan and business continuity plan are essential. The sustainability plan outlines strategies for implementing and maintaining the digital business capabilities beyond the grant period, ensuring their continued operation and relevance. Additionally, the business continuity plan delineates measures to mitigate disruptions and ensure the uninterrupted functioning of these capabilities in the face of unforeseen events or challenges. Together, these plans safeguard the long-term viability and effectiveness of the digital business capabilities, ensuring their sustained contribution to the project's objectives.
WP5: Data Access Applications management solution
The implementation of a Data Access Applications Management solution (DAAMs) for the Cyprus health data access body led by UCY and spanning form Month 1 to Month 45, involves several key stages. Initially, the project focuses on "Analysis and design," leveraging insights from previous initiatives such as Joint Action TEHDAS and HealthData@EU Pilot to ensure alignment and interoperability with other health data access bodies. Subsequently, "Implementation and piloting" activities address challenges and risks through a controlled pilot phase, ensuring the solution's readiness for broader use. Finally, with the functionality and security of DAAMs fully matured, the project progresses to "Deployment of an operational solution," making the system publicly available to receive, process, and respond to data access applications efficiently.
WP6: National Dataset Catalogue
for health data
Work Package 6, led by UCY, spanning form Month 1 to Month 45, aims the establishment of a national Health Dataset Catalogue (nHDsC) for Cyprus' health data access body involves a phased approach. Initially, "Analysis and design" activities are undertaken to define requirements and specifications, drawing from previous initiatives like TEHDAS and HealthData@EU Pilot to ensure alignment with other health data access bodies. Subsequently, "Implementation and piloting" address challenges through a controlled pilot phase, ensuring readiness for broader use. Finally, with the nHDsC functionalities and security fully developed, the project moves to "Deployment of an operational solution," making the catalogue publicly available. This allows data users to discover and evaluate existing health datasets for their intended purposes efficiently.
WP7: Secure Processing Environment
for Health Data
Work Package 7 is led by UCY and extends form Month 1 to Month 45. Given the sensitive nature of electronic health data, Cyprus' health data access body recognizes the importance of restricting access to such data and ensuring its security through a secure processing environment (SPE). To achieve this, the project outlines a series of steps, beginning with "Analysis and design" activities to define requirements and specifications based on high technical and security standards. Subsequently, "Implementation and piloting" address challenges through a controlled pilot phase to ensure the SPE's readiness. Finally, with the SPE's security features fully developed, the project moves to "Deployment of an operational solution," making the environment publicly available while ensuring compliance with stringent technical and security standards, thereby safeguarding the integrity and confidentiality of electronic health data.
WP8: Cross-border gateway to connect with the HealthData@EU infrastructure
Work Package 8, led by UCY, extend from Month 1 to Month 45 aims to facilitate cross-border workflows for the secondary use of electronic health data at an EU scale, Cyprus' health data access body is undertaking the connection to the HealthData@EU infrastructure. The project begins with "Analysis and design" activities, focusing on scrutinizing existing requirements and specifications for the cross-border gateway and designing the national connector to link the gateway to the national infrastructure. These efforts leverage insights from previous initiatives to ensure alignment and interoperability. Subsequently, "Implementation and piloting" address challenges through a controlled pilot phase, testing the connection to HealthData@EU before wider deployment. Finally, with the connection fully matured and requirements met, the project moves to "Deployment of an operational solution," launching the cross-border gateway to enable real use cases of cross-border health data utilization.
WP9: Health data quality enhancement
Work Package 9 led by UCY and spanning form Month 1 to Month 45 aims to improve the quality of electronic health data accessible through the health data access body, Cyprus is developing a health data quality enhancement toolbox. This initiative begins with "Analysis and design" activities to identify tools, dependencies, and legal requirements governing data quality enhancement. These efforts may draw upon insights from previous initiatives to ensure alignment with other health data access bodies. Subsequently, "Implementation and piloting" address challenges through a controlled pilot phase, testing the toolbox's deployment in a controlled environment before wider availability. Finally, with the toolbox fully developed and requirements met, the project moves to "Deployment of an operational solution," launching the health data quality enhancement toolbox to support data holders in enhancing the quality of dataset descriptors and raw data, thus improving the overall quality of electronic health data.